Lupus

People living with lupus are uniquely sensitive to ultraviolet radiation. Approximately 60% of people with lupus will suffer from severe skin irritations due to photosensitivity. In addition, research reveals that UV exposure triggers flares (the period when symptoms are in full effect) in up to 70% of patients with the disease. MDSolarSciences has put together a set of guidelines to raise awareness about photosensitivity in those suffering from lupus, as well as sun protective measures to follow.

Lupus is a chronic disease that is destructive to both internal and external bodily organs, notably the skin, blood, kidneys and joints. The disease affects both men and women of all ages and ethnicities. Classified as an autoimmune disease, lupus involves the production of autoantibodies (proteins) that impair and destroy otherwise proactive, healthy body tissue. The result is severe pain and swelling.

On an international basis; it is estimated that 5 million people are affected with one of the several forms of lupus; 1.5 million of them are Americans. Studies show that 90% of these patients are women between the ages 15-44.

Symptoms

• Photosensitivity
• Skin irritation and “butterfly” rashes due to UV light exposure
• Intense fatigue
• Irregular blood clotting
• Headaches
• Chest pain
• Body aches and inflammation

Complications:

Complications of the disease may come and go in an unpredictable manner. A “flare” or “flare up” is the term used to describe the period of time when symptoms are present; while a “remission” denotes intervals between flares, when symptoms are not in effect. Unfortunately, there’s no definitive way to tell how long a flare or remission will last. However, there are methods to lower a patient’s chances of prompting a flare—and quite a few of these safety procedures involve proper sun protection.

People with lupus have a serious and noticeable sensitivity to ultraviolet radiation emitted by both the sun as well as artificial (fluorescent and halogen) light.  Not only will UV exposure cause a distinct “butterfly” rash across their cheeks and nose, it is also a proven precursor to flare ups.  Up to 70% of patients have noticed a flare up after exposure to ultraviolet rays.

In addition to developing a butterfly rash, hive-like rashes, lesions and warts may result from UV exposure. These are most likely to appear on the face, back of hands, and neck. Possibly permanent bald spots on the scalp, lesions on the interior and exterior of the mouth (which may lead to more serious health issues such as squamous cell carcinoma) are other possible complications.

Tips:

	The first and most critical step is to avoid exposure to the sun between the hours of 10 am to 4 pm, regardless of weather conditions. UV rays are at their highest during this interval. For most people, avoiding the sun during these hours is close to impossible. However, we strongly encourage minimizing exposure at all times, especially during these hours, at the very least—and take the remaining preventative measures to ensure your protection. .
	UVA and UVB rays are equal threats to those of us living with lupus. Doctors recommend wearing a sweat and water-resistant UVA/UVB broad-spectrum sunscreen with an SPF of at least 30. Patients must remember to apply sunscreen all over exposed areas (especially the face, neck, back of neck, ears and hands) and to reapply as needed. .
	Since people suffering from lupus are especially susceptible to sun damage, wearing UPF 50+ sun protective clothing is essential. We suggest a wide-brim hat, long-sleeved shirt and long pants. These garments provide maximum sun protection. .
	Avoid all sources of ultraviolet radiation. In addition to sunlight, these include fluorescent lights (commonly used for kitchen cabinet lighting, wall fixtures, tray ceiling lighting, etc.) and halogen lights—the bulbs used in most outdoor lighting, overhead/film projectors, studio and stage lighting (photography, theatre, film, etc.) as well as medical lighting (surgery lights, microscope lighting, etc.) .
	Set up UV-protective tints/films on all windows of your home and vehicle. Windows only filter UVB rays—leaving your skin susceptible to harmful UVA radiation. Protect yourself by installing protective tints where possible. .
	Seek and practice stress-reducing methods. Studies prove that the sun and stress are two main triggers for lupus flares. Look for ways to reduce the amount of stress in your life while also taking measures to prevent yourself from UV radiation. Doctors recommend keeping stress levels to a minimum and getting plenty of rest. Eating healthy will help as well. .

*Consult a doctor if you have any further questions about lupus and/or sun safety measures and photosensitivity.

* The information displayed above is adapted from The Lupus Foundation of America.